National Register of Congenital Malformations (NRVV)

National Health Registers

PURPOSE OF DETECTION OF REQUESTED DATA

The purpose of detection of the requested data is registration of congenital malformations diagnosed in prenatal and postnatal screening; this is presently one of the basic necessary factors for evaluation of the health status of the population and an inseparable component of evaluation of prenatal, perinatal and postnatal health care.

Monitoring of prevalence of congenital malformations serves for evaluation of timely detection of congenital malformations. The obtained information is used for evaluation of the health status and quality of new population.

This information is also used as reference for conceptions of state health policy in this field. It is also used in international presentation of the monitored data, particularly in databases of World Health Organisation (WHO) and the Organisation for Economic Cooperation and Development (OECD).

RANGE OF DATA PROVIDED BY HEALTH ESTABLISHMENTS TO NRVV

National Register of Congenital Malformations is a nationwide population register that builds on the Information system Congenital Malformations maintained in IHIS CR since 1965. NRVV registers all congenital malformations detected in children up to 15 years, in fetuses in the course of pregnancy and also malformations in stillbirths.

1. Data on fetus

  • Identification number of establishment (IČO/PČZ), department
  • pregnancy
  • completed gestation week at detection of congenital malformation
  • detection of congenital malformation (year, month, day)
  • termination of pregnancy (year, month, day)

2. Data on child

  • personal identification number
  • citizenship in EU
  • health insurance company
  • birth data – weight (g)
  • birth data – length (cm)
  • birth weight (g)
  • birth length (cm)
  • detection of congenital malformation (year, month, day)
  • date of death (year, month, day)

3. Additional joint data on child

  • assisted reproduction
  • reason of detailed examination
  • prenatal diagnostics
  • prenatal diagnostics performed beyond the framework of biochem. and ultrasound screening – method
  • reason of absence of prenatal diagnostics
  • result of pregnancy
  • sex
  • congenital malformation – diagnosis (dg. from International statistical classification of diseases and related health problems in wording of the 10th revision (ICD-10)
  • data on mother
  • personal identification number
  • citizenship in EU
  • municipality of residence of mother
  • number of municipality of residence of mother
  • number of municipality with extended competence
  • marital status
  • occupation in 1st trimester
  • sector in 1st trimester
  • completed gestation week – of fetus – of child
  • multiplicity of pregnancy
  • congenital malformations in family – who afflicted
  • congenital malformations in family – diagnosis of congenital malformation in afflicted person (ICD-10)
  • diabetes mell. in 1st trim.- diagnosis (dg. from ICD-10)
  • infectious disease in 1st trim. – in gestation week
  • infectious disease in 1st trim. – diagnosis (dg. from ICD-10)
  • other disease in 1st trim. – diagnosis (dg. from ICD-10)
  • medication in 1st trim.
  • order of gravidity
  • order of parity
  • number of previous spontaneous abortions
  • number of previous artificially induced abortions (LIA)
  • data on father
  • year of birth
  • occupation
  • sector

STATISTICAL UNIT OF INVESTIGATION

Diagnosed congenital malformation (further only CM)

  • in fetuses, when CM was detected in prenatal diagnostics and in spontaneous abortions over 500 gram
  • in children up to completed 15th year of life
  • in stillbirths